


EPILEPSY AWARENESS MEDIA KIT
EMBARGOED: THURSDAY, MARCH 26, 2020
NATIONAL MEDIA ALERT
THURSDAY, MARCH 26, 2020
FOR IMMEDIATE USE
1 in 10 Aussies with epilepsy sustaining serious physical injuries
Call to improve community awareness, support & response to seizures this Purple Day®
One in 10 Australians living with epilepsy experience a seizure-related injury each year, many of which are potentially life-threatening, according to an article just published in MJA InSight to mark Purple Day® (an international epilepsy awareness day).1
The most commonly reported seizure-related injuries sustained by those living with the neurological (brain) disease include head, water immersion, driving, burns, fractures and dental-related injuries.1,2
Doctors, advocacy groups, patients and their families will join forces Australia-wide today, Thursday,
March 26 to highlight the serious injuries caused by epileptic seizures, and call for heightened awareness, understanding and support for the 250,000 Australians living with epilepsy,3 to create calmer waters through which they can safely navigate their physical journey with the disease.
To learn more, about the potentially life-threatening injuries sustained by those living with epilepsy,
tee up an interview with:
AVAILABLE FOR INTERVIEW
EXPERTS
Dr Kaitlyn Parratt
Prof Ernest Somerville
A/Prof Wendyl D’Souza
Prof Terence O’Brien
PATIENT ADVOCACY GROUP REPRESENTATIVES
Carol Ireland
Graeme Shears
Helen Whitehead
Fiona Allardyce
Wendy Groot
Robyn Wakefield
Emma Buitendag
AUSTRALIAN LIVING WITH EPILEPSY
Amy, 20
Phill, 35
Georgia, 19
Chelsea, 21
Brae, 22
Lisa, 39
Matt, 30
Hayley, 49
Purple Day is a Registered Trademark of The Anita Kaufmann Foundation.
BROADCAST VISION CAN BE DOWNLOADED HERE: https://vimeo.com/400152677/f254845227
FOR INTERVIEWS CONTACT:
Kirsten Bruce, Holly Hamilton Green or Bella Poidevin, VIVA! Communications02 9968 3741 or 0401 717 566 / 0434 799 839 / 0423 041 631
References
1. Parratt, K. and W. D’Souza. People with epilepsy; sailing against the wind. MJA InSight, 2020.
2. Tan, M., et al., Risk factors for injury in a community-treated cohort of patients with epilepsy in Australia. Epilepsia, 2019. 60(3): p. 518-526.
3. Deloitte Access Economics, The economic burden of epilepsy in Australia, 2019-2020. 2020.
Consultant neurologist & epileptologist, Royal Prince Alfred Hospital & Sharp Neurology, SYDNEY
Neurologist, epileptologist, Director, Comprehensive Epilepsy Service, Prince of Wales Hospital & Professor, University of New South Wales, SYDNEY
Neurologist, epileptologist & epidemiologist, St Vincent’s Hospital, MELBOURNE
Professor of Medicine (Neurology) & Head, Department of Neuroscience & Central Clinical School, Monash University MELBOURNE
Chief Executive Officer & Managing Director, Epilepsy Action Australia, SYDNEY
Chief Executive Officer, Epilepsy Foundation, MELBOURNE
Chief Executive Officer, Epilepsy Queensland, BRISBANE
Chief Executive Officer, Epilepsy ACT & epilepsy advocate, CANBERRA
Chief Executive Officer, Epilepsy Tasmania & Chair, Epilepsy Australia, HOBART
Chief Executive Officer, Epilepsy Centre (SA & NT) & Board Member Epilepsy Australia, ADELAIDE
Chief Executive Officer, Epilepsy WA, PERTH
Passionate cellist & Sydney Conservatorium of Music student living with epilepsy, SYDNEY
CEO & water-sports enthusiast who broke both shoulders during a seizure, SYDNEY
Nursing student who experienced her first seizure during her final high school exams, SYDNEY
University student whose strong support system helps her manage her epilepsy, MELBOURNE
AFL & gold detecting enthusiast whose epilepsy put his plumbing career on hold, HORSHAM, VIC
Avid writer who was diagnosed with epilepsy diagnosis after a brain haemorrhage, BRISBANE
Father & graphic designer whose epilepsy is limiting his career potential, GOLD COAST
Epilepsy support counsellor whose has lived with the condition for 14 years, PERTH
